IU was good, and I know this sounds pretentous, but the Doc was the first in a long time that I felt was smarter than me. Lately it's seemed they were all unprepared, unread-in on her case, and I was the one teaching them. Yesterday I was learning a lot in a short amount of time. She was quite prepared, and though she didn't have any solutions, she had many suggestions, and is talking with her other doctors, and talking with specialists from MD Anderson and Dana Farber today to see what option is the collective favorite.
Hopefully Ali will be a candidate for a clinical study, because most of the drugs are 2-3k per round. Ouch. I can just imagine the fight with insurance over that.
So we'll hear back from IU tomorrow, Friday, after our urology visit.
Today Alison and I are visiting the IU Medical Center in Carmel. There is a clinical study going on that we're going to see if she's a good candidate for. Wish us luck.
As far as her condition currently, fair to midlings is an over estimate. She's continued her radiation side effects (nausea vomitting burnt esophagus fatigue etc) as well as some bone pain and relative immobility. She's not staying in front of the pain because she vomits the pills as soon as she takes them. She's also got some effects from the kidney stent happening (blood in urine, abdominal cramping, etc)
Things are rough.
We see the urologist and the oncologist on Friday as well...
The light notes are that my nephew continues to help, and Alison is attended-to very nicely this week by her mom. There's nothing quite as soothing as motherly-nurturing.
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