Alison's PET/CT scan Tuesday revealed that she has tumors in her spleen, hip muscles, and pelvis now. The doctor disagrees with the neurofibroma biopsy result, having seen the PET/CT and reading the history, and told us that we might never know what this cancer is, or where it started. He said that we should treat it for a cancer that it most likely is, which in his opinion, he feels that all the cancer, tumors and bone involvement is the same. He said since the treatments for what we've assumed was Neuroendocrine have failed, and we've exhausted each of them, we should try a treatment with a chemo that treats other cancers that act the way Alison's is acting. We are seeing a sarcoma specialist and a neurosurgeon soon.
We remain positive, feeling like we're getting closer to the answer, or at least the next good step. I've really come to realize lately that it's not the information you have, not even what you think, but the way you think it.
I know that if we can manage to stay under water long enough this time (it feels like we're holding our breath and running out of time), we'll find a real good place to surface.
skip to main |
skip to sidebar
No comments:
Post a Comment